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  International Journal of Emergency Mental Health and Human Resilience
• Ehlers-Danlos Syndrome (EDS), an Hereditary, Frequent and Disabling Disease, Victim of Iatrogenia due to Widespread Ignorance
• Our experience of the EDS (Hamonet, 2012) disease is based on a cohort of 2300 cases (children and adults with 80% female cases), collected between 1988 and 2015.
• The delay for diagnosing an EDS case is in average 21 years (Hamonet et al., 2012). The absence of diagnosis is at the root of a chaotic medical process with a heavy impact on families and patients, with a medical drifting from specialist to specialist, a constant challenge of the sincerity of patients from physicians unable to receive valuable clues from medical imaging or biological test despite severe symptoms
• Despite its high level of prevalence, the EDS is still largely unnoticed by physicians. Most of them connect the syndrome with their own field of specialization, i.e. rheumatology (fibromyalgia, spondyloarthritis, arthrosis), neurology (multisclerosis), respiratory diseases (asthma) and, in particular, psychiatry (depression, bipolar state, though there is a link between EDS and autism)
• A Twisted Clinical Description Dating back from the History of this Disease
• The Münchausen syndrome or even hysteria have been used in several conclusions from physicians. The patient is led to doubt of his own mental health, and so is its family. The proposed treatments, in particular anti depressives, only worsen the symptoms and surgical interventions (up to 46 in one of our cases) cause irreversible damages leading to rarely seen intense disabling situations
• Despite its high level of prevalence, the EDS is still largely unnoticed by physicians
• The severity of this disease and its best diagnostically signs are
• Symptoms Evidencing the Severity of this Disease have been Ignored

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