22 items | 19 visits
This list has links to blogs and sites which give accounts of patient experiences of different illnesses.
Updated on Oct 26, 14
Created on Feb 11, 09
Category: Health & Wellness
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Natalie Lafferty's List: Patient Experiences
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Feb 11, 09
A blog written by a graduate in the North East of England about their experience living with cystic fibrosis
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Mar 03, 09
It Ain't Television... It's Brain Surgery, is a whimsical and enlightening first person account by Ray Farkas of his brain surgery operation.
Farkas, an Emmy award-winning producer and director, was diagnosed with Parkinson's disease in May 2000. Not wanting to live the rest of his with tremors and other symptoms, he decided to undergo Deep Brain Stimulation surgery, a procedure intended to improve his quality of life. -
Mar 03, 09
Patient blog - Jeff is an educational technologist and had a brain tumour and surgery several years ago. There has been a recurrence and he's writing about his latest experiences.
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Mar 24, 09
Maarten's blog detailing his journey of his life since a tumour was found between his lungs in June 2008
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Mar 24, 09
Stories of coping and living with different illnesses by patients. Includes patient videos of patients talking about treatments etc.
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Jan 28, 09
NHS Choices blogs let you read, and comment on, the latest views, news and tips from more than 100 patients, carers and medical professionals writing across nine topics - arthritis, asthma, COPD, depression, diabetes, heart conditions, kidney disease, prostate cancer and pregnancy.
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Aug 24, 09
Brighton Bear talks about living with HIV for the past 25 years. Talks about how he came to have an HIV test and, how being HIV positive has affected him psychologically and physically. He has remained well and not experienced any of the typical HIV related illnesses.
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Aug 24, 09
Brighton Bear talks about the role of the internet in providing information and social support for people living with HIV.
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Mar 10, 10
The Patient Voices programme was founded by social entrepreneurs Pip Hardy and Tony Sumner in 2003, and aims to facilitate the telling and the hearing of some of the unwritten and unspoken stories of ordinary people so that those who devise and implement strategy in health and social care, as well as the professionals and clinicians directly involved in care, may carry out their duties in a more informed and compassionate manner. We hope that, as a result of seeing the stories, patients, their carers and clinicians may meet as equals and work respectfully together for the benefit of all.
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Mar 19, 10
Robin's daily posterous on life as a Cushing's Diseases patient
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Jun 05, 10
Medical students at Penn State make films of their patients to gain more understanding of what it's like to live with serious illness.
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Nov 23, 10
Case study on using Patient Opinion in health professions education.
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