Dat_nana02's List: Research

The only UK charity exclusively dedicated to research into interventions in autism. The organisations carries out high quality, independent research into new & existing health, education, social & other interventions. It works with individuals on the autism spectrum, carers, service providers & policy makers to make sure that research addresses real issues & that it makes a significant difference to people's lives.

Founded in 1997, the charity provides practical & emotional support to brain tumour patients & their families & has a national network of grassroots supporters. The organisation's Scientific & Medical Advisory Board ensures a solid profile for research & its Annual Educational Conference provides a focal point for dynamic discussions within the UK brain tumour community.

SDBTT Astro fund is the only charity in the world to concentrate solely on low-grade gliomas, of both adult & paediatric types. Gliomas are the most common type of primary brain tumour. Since 1996, the Trust has become the largest brain tumour charity in the UK with the highest level of laboratory based childhood and adult brain tumour research in the country.

The Society is the leading national epilepsy medical charity working for everyone affected by epilepsy, through its cutting edge research, awareness campaigns & expert care.

The Society provides a a range of services to people affected by encephalitis & their loved ones, including: Telephone information line; Material & up to date information on the condition, its consequences, treatment & rehabilitation; Dedicated direct support service offered via telephone, letter, e-mail &, on occasion, outreach visiting; Opportunities to get together with other people affected by the condition; Regular newsletters. The Society also contributes to ongoing research to further understand the causes & consequences of encephalitis.

Epilepsy Action offers a wide range of information about epilepsy & for people living with & affected by the condition as well as actively encouraging research into the social & medical (non-laboratory) aspects of epilepsy.

The Huntington's Disease Association exists to support people affected by the disease & to provide information & advice to professionals whose task it is to support them. Teams of Regional Care Advisers provide a range of services, information & advice to families & professionals as well as liaising with local branches & self-help groups, & organising training for service providers such as health, social services, nursing homes, & residential care staff teams plus service users. The Association's research programme promotes & also funds both medical & social research.

The MND Association's mission is to fund & promote research to bring about an end to MND. Until that is achieved it strives to do whatever it can to enable everyone with MND to receive the best care, achieve the highest quality of life possible, & die with dignity. The families & carers of people with MND are supported by local Regional Care Development Advisers together with a network of more than 95 branches & self-help groups plus a network of 15 Care Centres across the country. The Association funds & promotes research to understand what causes MND, how to diagnose it &, most importantly, how to effectively treat it so that it no longer devastates lives.

The MS Society is the UK's largest charity for people affected by multiple sclerosis (MS) - about 100,000 people in the UK. It is a membership-led organisation providing information & support to anyone affected by MS from a network of over 350 local branches. Its mission is 'To beat MS' for which purpose substantial funding of research is a key objective for the Society.

The MS Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research & campaigning for specialist multiple sclerosis services.

Research funding by the PD Society has led to advances in the search for the cause of Parkinson's, improved medical & surgical treatments, better therapies & equipment, & towards finding a cure. The Society provides information & advice from specialist nurses & advisers on its Helpline offer support & advice. A wide range of publications answer questions on all aspects of the condition. Local support is provided through a large network branches & support groups located across the UK, enabling everyone affected by Parkinson's & their families to meet others in similar situations.

The Stroke Association is the only UK wide charity solely concerned with combating stroke in people of all ages. It funds research into prevention, treatment & better methods of rehabilitation, & helps stroke patients & their families directly through its Rehabilitation & Support Services. The Association campaigns, educates & informs to increase knowledge of stroke at all levels of society, & it acts as a voice for everyone affected by stroke.

A Charity set up by younger stroke survivors for younger stroke survivors

Dystonia is a little known neurological condition affecting the central nervous system consisting of a group of related movement disorders, characterised by involuntary & often very painful & prolonged spasms of muscle contractions. A.D.D.E.R. covers the entire country but has its roots in the North East of England & Cumbria. A database of over 1,700 people with Dystonia throughout the region, has been established. A number of support groups have also been established, run entirely by people with Dystonia or who have family members with Dystonia.

The Alzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales & Northern Ireland. Alzheimer's Society staff & volunteers work together to provide help & information to people affected by dementia in their communities - branch services include day care & home care for people with dementia, as well as support & befriending services to help partners & families cope with the demands of caring.

The ME Association, founded in 1976, funds & supports research & provides information & support, education & training. In this role, people with ME (Myalgic Encephalopathy), sometimes known as CFS (Chronic Fatigue Syndrome), professionals & all others interested in the illness, benefit.

The Myasthenia Gravis Association has as its objective the promotion of the welfare of sufferers from Mysathenia Gravis in the United Kingdom & the Republic of Ireland. The Association conducts the following activities: Fund Raising; Education; Medical research; Welfare. Currently, there are two branches in the North East of England.

The PSP Association is the only national organisation in the UK dedicated to the support of people with Progressive Supranuclear Palsy (PSP) & the related disease Cortico Basal Degeneration (CBD), & those who care for them. The Association funds research, & provides support to patients, families & carers through the services offered on a UK-wide basis, through a Nurse Specialist helpline & local support groups. Publications, & an Annual Symposium for carers & therapists, together with targeted information provided to medical health & welfare profession through a team of Development Officers, based around the UK, helps to raise awareness of PSP & CBD on a local & national level.

In England & Wales, Scope focuses on people with cerebral palsy & aims to ensure that disabled people achieve equality: a society in which they are as valued & have the same human & civil rights as everyone else. A range of information leaflets & factsheets on therapies & other aspects of living with disability, is available. Scope carries out research into issues affecting disabled people & organises national & local campaigns.