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I knew I'd be at death's door in the morning. But it didn't matter...the inspiring story of cystic fibrosis sufferer Alex Stobbs - Daily Mail 15th September 2009
At 19, Alex Stobbs is exuberant, engaging, musically gifted - and suffering from cystic fibrosis, the incurable lung disease that means, any day, he could catch an infection and die.
Why I'm still scared of dying: Musical prodigy Alex Stobbs tells of facing up to his crippling lung disease - Daily Mail 14th September 2009
Alex Stobbs is 19 and suffers from cystic fibrosis, an incurable disease which is destroying his lungs.
But Alex is also a prodigy who moved millions of viewers when he starred in a Bafta-nominated documentary conducting Bach's Magnificat at Eton College, where he was a music scholar.
Liverpool leads way in treating the world - Liverpool Daily Post 7th September 2009
Liverpool’s Biomedical Research Centre has now been open for more than seven months. Health reporter Liza Williams finds out about the scientists developing treatment for HIV, Cystic Fibrosis and many other debilitating conditions
Alex Stobbs: Singing from his own hymn sheet - Daily Telegraph 7th September 2009
Alex Stobbs, star of theTV documentary A Boy Called Alex, has now written a book, A Passion for Living, about his determination to excel in music despite having cystic fibrosis
Widnes man Mark defies doctors and takes the bronze - Warrington Guardian 29th August 2009
HE had to video his best man’s speech ahead of his friend’s wedding and was ready to dart out of his dad’s funeral at a moment’s notice.
Mark Allen had to be ready to go to hospital within 10 minutes as he anxiously waited for a double lung transplant.
'My illness inspired me to be a medic' - BBC Health News 18th July 2009
Dr Nigel Brooke's desire to join the medical profession was one shaped by his own illness.
As a child the 34-year-old consultant spent weeks at a time each year being treated for his cystic fibrosis.
Gene Find Offers Hope For Cystic Fibrosis Treatment - The Telegraph 25th February 2009
A gene discovery could pave the way to new treatments for cystic fibrosis, scientists have said.
Gene modifies lung disease impact - BBC Health News 26th February 2009
Researchers have discovered a gene that modifies the severity of lung disease in people with the lethal genetic condition cystic fibrosis.
The US study, published by Nature, may aid development of new treatments.
Cystic fibrosis sufferers offered hope by gene therapy treatment - The Telegraph 16th February 2009
Cystic fibrosis sufferers have been offered new hope of an effective treatment that would use a 'super' virus to swap defective genes for healthy ones.
Cystic fibrosis gene cure closer - BBC Health News 17th February 2009
US researchers say they are a step closer to developing a gene therapy cure for cystic fibrosis (CF).\n\nIn lab tests their altered virus effectively delivered a new gene to replace the faulty one that causes CF and completely rid the lung of disease.
Cystic fibrosis sisters die within months of each other - The Telegraph 28th November 2008
Jodi and Lucinda Dunmore both suffered from the terminal lung disease.
Lucinda died aged 19 after contracting a flu virus on March 4 2007 and Jodi died in hospital on November 19 this year, aged 22.
Pictured: The 'fun-loving and beautiful' sisters killed by the same disease within 20 months of each other - Daily Mail 30th November 2008
Many sisters are very close but Jodi and Lucinda Dunmore had more reason than most to feel a strong bond.
Both were born with cystic fibrosis and helped each other get the most out of life despite the lung disease.
But, sadly, it ultimately also united them in death when the sisters passed away less than two years apart.
Genetic disease testing advance - BBC Health News 25th November 2008
Blood taken from a pregnant woman may reveal if her baby has a wide range of genetic diseases, researchers claim.
A Chinese University of Hong Kong team said the technique could identify cystic fibrosis, beta-thalassemia and sickle cell disease.
Cloned pigs could help scientists find cure for cystic fibrosis - Daily Mail 26th September 2008
Cloned pigs that appear to develop cystic fibrosis just as people do could accelerate efforts to tackle the disease.
Scientists created genetically engineered piglets with the same mutation that causes the lung condition in people.
Scientists create pigs with cystic fibrosis in search for life-saving new treatments - The Times 26th September 2008
Pigs have been bred with cystic fibrosis, providing scientists with a powerful animal model that will aid the development of new treatments for the incurable condition.
The creation of the pigs, using genetic engineering and cloning technologies, removes one of the biggest barriers to research into cystic fibrosis.
New blood test to spot Down's syndrome at seven weeks leads to designer babies fear - Daily Mail 24th September 2008
A new blood test for pregnant women that detects genetic disorders in their unborn children has raised fresh fears over 'designer babies'.
The simple test could be available in five years and can diagnose conditions such as Down' s syndrome and cystic fibrosis.
Simple powder to beat 2,400 genetic diseases goes on sale in two years - Daily Mail 14th September 2008
A powdered drug which eases the symptoms of incurable genetic diseases could be on sale within two years, researchers say.
They hope it could treat 2,400 conditions, including some types of cystic fibrosis and Duchenne muscular dystrophy, as well as the blood clotting disease haemophilia.
Venomous clues in lung bug battle - BBC Health News 7th September 2008
Bacterial colonies in the lungs of cystic fibrosis patients use chemicals found in snake venom to attack them, say UK researchers.
The Pseudomonas bug lives in "biofilm" communities in the lungs, becoming resistant to antibiotics and increasingly hard to treat.
The new pill that could signal the death of the common cold - Daily Mail 12th August 2008
A pill to cure the common cold has been developed by scientists.
The 'holy grail of cold research', it could be used to clear up sniffles in healthy people and prevent life-threatening infections in asthma and cystic fibrosis sufferers.
Trials on hundre
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