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"This supplement is known to offer several health benefits and - surprise, surprise - it actually has been studied specifically for these conditions and research has been promising."
"This below link appears to be a forum of nurses and medical people who are focusing on making fun of ME/CFS in the most cruel way, including laughing at the most ill in our community. I suggest folks from our community reply, but do so with information instead of with anger and simply attacking back, otherwise we risk confirming their misguided beliefs about us. "
"To celebrate 20 years since CFS International Awareness Day was created, here are the top 15 or so most watched CFS English speaking video’. Some of the best are the latest, check out, for instance, GettingWellFromME’s recent series, with its fine production values. At the end we have a video made for the anniversary today."
"This mislabeling has several adverse consequences. First, it makes it all the more difficult to separate out the discrete illnesses that are suffered by people with “real” CFS. Second, once this group of people who have a non-CFS illness are labeled as also having CFS, they are added to the pool of those who might become subjects in CFS studies, and this can seriously muddy a study’s findings."
"Awareness is a powerful thing. It's done wonders for some illnesses, such as muscular dystrophy, breast cancer and Parkinson's disease. Awareness means public acceptance and money for research - both of which are desperately needed by those of us with fibromyalgia and chronic fatigue syndrome."
" M.E. is a complex, chronic, multi-system illness that affect the body in similar ways to Multiple Scelerosis. In addition, inflammation of the neurological system can lead to heart disease, extreme muscle pain and other debilitating and life-threatening conditions."
"She's exactly right: it is essential for us to find something we love that we're still able to do! "
"Stonebird is delighted to announce that finally the paperback version of Care for Someone with Severe ME is ready and available to purchase"
"The major neurotransmitter to operate in the basal ganglia is dopamine, which research suggests can be dysregulated in people with this illness. The researchers speculate that the reduced activity may also be related to inflammation. They say both of these issues could be important areas for future research."
"The study suggested that not only was ME/CFS a miserable disorder to have but that the portion of the brain that guides movement was tweaked…The news story focused on the ‘reward’ aspects of the basal ganglia but basal ganglia problems also play a role in other severely fatiguing disorders such as Parkinson’s and multiple sclerosis."
"Many of us with fibromyalgia and chronic fatigue syndrome have heat sensitivity, which means our bodies get overheated easily and have a hard time cooling down. Getting too hot can lead to other symptoms, such as puffiness, achiness, headaches, dizziness, added fatigue, nausea and more."
"The findings show that patients with chronic fatigue syndrome have decreased activation of an area of the brain known as the basal ganglia in response to reward. Additionally, the extent of this lowered activation was associated with each patient's measured level of fatigue. The basal ganglia are at the base of the brain and are associated with a variety of functions, including motor activity and motivation. Diseases affecting basal ganglia are often associated with fatigue. These results shed more light on this mysterious condition, information that researchers hope may eventually lead to better treatments for chronic fatigue syndrome."
"In a year of intriguing studies this is one of the more intriguing. Stress has been something of a keynote in CFS research lately and researchers now regularly employ different kinds of stress tests to provoke abnormalities in patients. But does this unusual response to stress make its way all into the DNA of our cells? The National CFIDS Foundation in collaboration with the Nancy Taylor Foundation is betting $133,000 that it does…"
"Do you struggle with things like going out to dinner, reading a book, playing games and watching TV or movies? You're not alone. Get a look at common problems those activities pose for us and how you might be able too work around them:"
"Pain is necessary. In many cases, it's a good thing - whether it feels like it or not. However, when your body starts processing pain abnormally, as in fibromyalgia and some cases of chronic fatigue syndrome, it ceases to be helpful and starts doing harm."
"In one instance, a million or more patients who suffer from the devastating, life-robbing disease known as Chronic Fatigue Syndrome (CFS), or myalgic encephalomyelitis, struggle through days of almost total incapacitation, disorientation, pain and despair, clinging to hope that science will rescue them. All that's known is that like AIDS, it's a disease of the immune system."
"A new study reports at least 5% of patients with CFS nearly 3 years after an acute Giardia enteritis infection, providing evidence of yet another infectious agent that can trigger CFS along with Epstein-Barr Virus, Viral meningitis and the bacterium Coxiella burnetii, amongst others. Other studies on the same outbreak also show a strong link between the acute Giardia infection and both chronic fatigue and IBS."
"A normal, healthy person’s body takes a mildly stressful situation and processes it in a normal way. But people with ME/CFS do not have the capability of handling even the smallest amounts of stress. Part of the problem with this disease is that even the smallest amounts of stress can send us to our beds for weeks at a time. If we have to deal with stressful situations for weeks, months at a time, our bodies will completely shut down and cannot recover quickly."
"When we're in crisis mode, everything has to be simplified. My husband cuts back on overtime if he can. Dinners are usually from the microwave. Only the laundry that absolutely must be done gets done. Socializing? Forget it. Non-essential appointments are canceled."
I'm in crisis mode permanently then!
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