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12 Days: Rio Grande City mother cherishes time with disabled daughter | alison, mother, hours - 12 Days of Christmas - TheMonitor.com
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Alison has lived and thrived well beyond the expectations of the doctors that have treated her. Juana and the family hold onto a cautious hope that their days with her — however difficult at times —– will continue.
The medical advances in the field withstanding, Alison’s future is still uncertain and her condition is tenuous.
“She’s just so sensitive in a sense that if she gets a bad case of bronchitis, it might go wrong,” the physician assistant, Guerra, says. “But so far, so good. She always responds well when she gets treatments and surprises everybody. She’s just a fighter.”
From Alison’s bedside in the ICU unit, Juana says her one wish for Christmas is that her daughter not be in pain, that she continues to progress and advance and, most of all, that she can be with her “princess.”
“Spending the day with her is beautiful. Her smile and everything,” Juana says. “She is the most amazing gift God has given me.”
Carrollton couple finds support to deal with unborn son's terminal condition | News for Dallas, Texas | Dallas Morning News | Life/Travel: Health
Other moms and dads who have lost babies and children will relate to this. I know I do.
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T.K. parked their SUV and they stepped into the late-afternoon heat. Staring down at a stone angel, he realized he was standing over a tiny grave.
"You see that?" he said, reading dates. "Three days. Three days."
"'She was not here long,' " he recited from the epitaph, " 'but will be loved forever.' "
The cemetery official explained available plots and rules: A bench was fine if it fit on their plot. Crape myrtles and rose bushes were OK, but no deep-rooted trees.
"I never imagined this," Deidrea said as T.K. kept pointing out children's graves. "My husband said we went from college to caskets."
The official agreed to hold several plots until after Thomas' birth.
"I don't want to give up," Deidrea said. "What if there's a miracle? We may have an 18-year-old son mad at us for picking out his grave right now."
Deidrea asked T.K. to stop at her family plot on the way out. She stood longest over the graves of a great-uncle who died at 8 months after eating lye soap and a great-aunt who drowned in a farm pond at 12.
Until this cemetery visit, she and T.K. hadn't grasped how many families faced losses like theirs. Now they understood why family elders lingered over these tiny graves with a sadness that never softened. Big gravestones marked full memories and lives. Small ones bounded unfinished futures and dreams.
T.K. patted her arm. "You OK?"
She curled into his side. "This was a big day."
He nodded. "Sonogram, funeral plans."
Bring The Rain
The blog of another mother who carried her baby to term and loved the short time they had together.
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I will permanently bear the mark of a woman who has lost her child. There are many of us walking here...in the grocery store, at the neighborhood barbeque, at the movies. We walk without necessarily recognizing each other, side by side and a million miles apart. If you are one of these women, I want you to know that as I write these words, I am praying for you. I am mourning what you have lost in this life. I am praying that God will fill you as only He can, and that in time, you (and I) will be with our daughters and our sons again. Know that I hurt with you tonight.
By God's Grace
The blog of a mother with a little girl who has trisomy 18 and is defying the odds! She is a beauty too!
little april rose
A remarkable blog by a young woman pregnant with a Trisomy baby girl who also has HPE who has decided to carry her to term and just let life happen. A powerful witness!
The story of Faith Hope
Faith goes to heaven - blessings and prayers for her courageous and loving mother.
TheCatholicSpirit.com - Remembering Emilie
More about Emilie Lemmons, the blogger who passed away last week from sarcoma.
Our Baby: Our Baby
A family welcomes their baby with holoprosencephaly and care for him at home. A lovely little boy and a caring family.
Life Isn't Always Beautiful, But It's a Beautiful Life: Precious Gavin
The beautiful poem from a little baby saint's aunt.
WITT HARRIS LUPHER
Please keep Baby Witt and his parents in your prayers as they deal with his diagnosis of Trisomy 18.
The more children, the more love -- An interview with a mother of 20
Last year, I got my proverbial butt kicked by suggesting to a fellow blogger after her public diatribe on why she was deliberately only going to have one child (after 9 years of infertility- go figure)that she might be making a big mistake. So it was refreshing and affirming to read this interview from a mom of 20 children who has found large family life to be a blessing to her as a woman, and strengthening her walk with the Lord.
Michelle Malkin » Your spirit-lifter of the day
Keep the kleenex close by to watch this - Sarah Palin and baby Trig!
CNSNews.com - Football Legend Would Pick His Down Syndrome Son Over ‘Normal’ Child
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(CNSNews.com) – Legendary football coach Gene Stallings made history as the youngest college coach at the helm of his alma mater, Texas A&M, and a perfect 12-0 season during his reign at the University of Alabama. But he says raising his son Johnny was his greatest reward.
“My life wouldn’t have been nearly as rich without Johnny, no question about it,” Stallings told CNSNews.com of his son, who was born with Down syndrome in 1962. -
The two saddest days of my life were when he was born and when he died,” Stallings said. “When he was born, I was devastated, and when he died, I was even more devastated.”
Coach Gene Stallings and his son Johnny (Photos courtesy of Paul W. Bryant Museum/CNSNews.com)That’s because, Stallings said, he did not know then what he knows now.
“If the good Lord asked if he could give me a perfectly normal child or Johnny, I’d pick Johnny every time,” Stallings said. “No doubt about it.” - 3 more annotations...
My Domestic Church: Keeping my eyes on my own paper
A piece I wrote a few years ago. I wish I had linked to it when I was defending myself against Sal and the AGH gang last year.
Castle of the Immaculate: Should I continue to have children despite special needs?
A refreshing view of a mom of many with special needs children who is lovingly open to more, via adoption or birth.
The Risk of Love | Catholic Exchange
Mark Shea gives a very well-reasoned approach to dealing with the pregnancy of a possibly terminally ill baby.
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but to first ask ourselves how we might respond rightly in a similar situation.
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n talking to my wife Janet, (the actual baby carrier in this family), she points out the following:
First, ultrasounds have been wrong.
Second, miracles happen sometimes.
Third, and most salient here: every baby she has had is dying. The question is simply, when? Most of them, God willing, will die in 50 to 70 years. But they could die in five minutes.
- 2 more annotations...
Gianna Schmidt's Story 1/25/08
Her parents knew that little Gianna would not live very long. She might not even survive birth, but with prayerful support from people all over the world, they birthed their little girl and got to spend 45 precious minutes with her before she peacefully died in their arms. A beautiful story of faith, courage and love.
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I think this story really shows what a Catholic, pro-life family can do in the world with their witness to Jesus,” said Father Brendan. “Our world is so afraid of suffering and bad news, we often want to run from it.
“But what I saw was Christ transforming their lives and the lives of people around them.”
Though Gianna’s life did not end the way the Schmidt family wanted, they take consolation in knowing she is in heaven — and that she was loved during her time on earth.
“We never in our lives had to surrender our lives and will to God so much. But Gianna forced us to do that,” said John. “We had to pray with grace and dignity, even through the rough moments, and embrace her life and our time with her.
“This was such a hard experience that we could have easily missed out on it becoming a beautiful, life-changing event.”
Countless people reached out to grieve and celebrate with the family, help around the house, and provide meals during the pregnancy. Families from Jacob’s kindergarten class at Prince of Peace School created a rose garden in honor of Gianna.
“We will forever be touched by the kindness others have shown us. It helped us be able to survive day to day,” said Jennifer.
My Domestic Church: EIFWAIL and Catholic Teaching.
Anne Basson and I continue round 3 or 4 of our debate and discussion continuing from 2005.
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