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Nor are parents generally aware of the extent to which abortion has become part of routine obstetric care when it is determined that a baby has a disability. Results of an American College of Obstetricians and Gynecologists (ACOG) survey reported that ninety percent of the doctors responding considered abortion because of fatal fetal anomaly a justifiable treatment option, and 63% considered abortion a justifiable treatment option because of a non-fatal anomaly. Using a simple semantic slight of hand abortion becomes a treatment option, and medical professionals effectively disengage from the baby with a prenatal diagnosis, and signal that it is reasonable for the parents to do the same. As a result abortion is often presented as the only option to parents who have already bonded with, loved, and named their baby.
Research, however, suggests that many parents are in fact looking for some other option. Most will choose to continue their pregnancy if offered a program of comprehensive support. Parents want something better than abortion. They want someone to affirm the dignity of their child and to accompany them on the lonely and unfamiliar path from the diagnosis to the birth.
"For I realize, that even when my body is well past the age of bearing babies, even if I should live until I am 100, always, I will be an expectant mother, until the day I hold my babies for eternity."
Beautiful
Very thought provoking. The author of this article promotes the use of hospice care. I would too with the caveat that you choose the hospice care provider with care. I would avoid using hospice care in a nursing home setting because my experience with that was not a good one.
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Several years ago, my older cousin Torch (born at home by the light of a flashlight—or torch) had a seizure that turned out to be the result of lung cancer that had gone to his brain. I arranged for him to see various specialists, and we learned that with aggressive treatment of his condition, including three to five hospital visits a week for chemotherapy, he would live perhaps four months. Ultimately, Torch decided against any treatment and simply took pills for brain swelling. He moved in with me.
We spent the next eight months doing a bunch of things that he enjoyed, having fun together like we hadn’t had in decades. We went to Disneyland, his first time. We’d hang out at home. Torch was a sports nut, and he was very happy to watch sports and eat my cooking. He even gained a bit of weight, eating his favorite foods rather than hospital foods. He had no serious pain, and he remained high-spirited. One day, he didn’t wake up. He spent the next three days in a coma-like sleep and then died. The cost of his medical care for those eight months, for the one drug he was taking, was about $20.
Torch was no doctor, but he knew he wanted a life of quality, not just quantity. Don’t most of us? If there is a state of the art of end-of-life care, it is this: death with dignity. As for me, my physician has my choices. They were easy to make, as they are for most physicians. There will be no heroics, and I will go gentle into that good night. Like my mentor Charlie. Like my cousin Torch. Like my fellow doctors.
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My mother was universally adored -- even her pharmacists and hair stylist paid a call during “shiva” -- for three reasons, as I learned from everyone to whom I spoke: She was always happy; she treated everyone as if they were the most special person in her life; she carried herself with class and dignity. If you want to be widely loved, there’s the recipe.
A journey to place a grave marker for a baby that died over 80 years ago!
A wonderful article on learning from death!
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Below are some of the key lessons I learned from her as she began to embrace death in the final days and weeks of her life. These are simple (although not easy) reminders for each of us about how to live life more fully:
1. Express Yourself:Say what you have to say, don't hold things back. As my mom got closer to death, she began to express herself with a deeper level of authenticity and transparency. We had conversations about things we'd never talked about and she opened up in ways that were both liberating and inspiring. Too often in life we hold back, keep secrets, and don't share what's real -- based on our fear of rejection, judgment, and alienation. Expressing ourselves is about letting go of our limiting filters and living life "out loud."
2. Forgive:My mom and I come from a long line of grudge holders. Like me, she could hold a grudge with the best of 'em. I watched as she began to both consciously and unconsciously let go of her grudges and resentments, both big and small. It was if she was saying, "Who cares?" When you only have a few months (or weeks) to live, the idea that "Life's too short," becomes more than a bumper sticker or a catch phrase, it's a reality. And, with this reality, the natural thing for us to do is to forgive those around us, and ourselves.
3. Live With Passion: Going for it, being bold, and living our lives with a genuine sense of passion is so important. However, it's easy to get caught up in our concerns or to worry what other people will think about us. My mom, who was a pretty passionate woman throughout her life, began to live with a deeper level of passion, even as her body was deteriorating. In her final days and weeks, she engaged everyone in conversation, talked about what she was passionate about, shared grandiose ideas, and let go of many of her concerns about the opinions of others. It was amazing and such a great model and reminder of the importance of passion.
4. Acknowledge Others:At one point about a month or so before my mom died she said to me, "It's so important to appreciate people ... I don't know why I haven't done more of that in my life." Even in the midst of all she was going through and dealing with (pain, discomfort, medication, treatment, and the reality that her life was coming to an end), she went out of her way to let people know what she appreciated about them -- and people shared their appreciation with her as well. My friend Janae set up a "joy line" for people to call and leave voice messages for my mom in her final days. We got close to 50 of the most beautiful messages, all expressing love and appreciation for my mom -- most of which we were able to play for her before she passed away. Appreciation is the greatest gift we can give to others - and, we don't have to wait until we're dying to do it or until someone else is dying to let them know!
5. Surrender:While my mom clearly wasn't happy about dying, didn't want to leave us or her granddaughters, and felt like she had more to do on this earth, something happened about a month and a half before she died that was truly remarkable -- she surrendered. For my mom, who had a very strong will and was a "fighter" by nature, this probably wasn't easy. However, watching her surrender to what was happening and embrace the process of dying was truly inspirational and life-altering for those of us around her and for her as well. So much of the beauty, healing, and transformation that occurred for her and for us during her dying process was a function of surrendering. Surrendering isn't about giving up, giving in, or selling out, it's about making peace what is and choosing to embrace life (and in this case death) as it shows up. Our ability (or inability) to surrender in life is directly related to the amount of peace and fulfillment we experience.
A touching story - things really do happen for a reason.
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Colton Burpo, who almost died at age four when his appendix burst, says he met his dead sister in Heaven and “sat on Jesus’ lap.” The remarkable thing is, Colton’s parents, Todd and Sonya, had never told him about his sister, who Sonya miscarried a year before Colton’s birth. They were astonished by his story, as are we! But, are his visions real or made up in his dreams?
After his appendix burst and undergoing two emergency surgeries, Colton, of Imperial, Nebraska, was hanging on by a thread. While his parents watched his procedure from the viewing room, their son was up in Heaven, meeting his unborn sister and looking down at them praying.
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Goldberg's mother, Emma Johnson, passed away from complications following a stroke on Aug. 28. The loss is difficult to get used to.
"I used to talk to her every day," says The View co-host. "I'm still in the habit of talking to her, you know, but I just wish she were here with me." <!-- jump -->
What types of things did Goldberg and her mother talk about? "Every day she'd say, 'I'm proud of you,' " recalls Goldberg. "And I would respond, 'I'm proud of you.' I was very lucky to have her as a mother." -
"I know she had a great life," continues Goldberg, "so I can't be too sad. She had a great time of it. But of course I'm sad because I really miss her."
Despite her mourning, Goldberg has found a silver lining. "We didn't leave anything unsaid," she explains.
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To live without Ryan is awful. I don’t want anyone to get the idea that we are being particularly saintly about it. Knowing that something is good for you and your soul and living with it are two different things. Many nice things could be said about David, the children and I, but saint is not the word that jumps to mind. Really. So we struggle mightily with grief, confusion and anger. We gasp when the pain stabs us, when a memory overcomes or a memento crosses our path. The tidal wave that is grief leaves us breathless and weary. However, we are Catholic and we know that our suffering is not in vain, we have the ultimate example of that in the Passion and Death of Christ. So in my very imperfect way I try to follow the example of Mary and trust my God, who I know loves me. Who has a plan for my family that will reunite us all in heaven and give us eternity to spend loving.
Wonderful insights by Dennis Prager
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But while age at death is the whole story for outsiders, it is only half the story for a person's loved ones. One does not miss a loved one less because he or she died at 89. My mind is entirely at peace with my mother's death at 89, nearly all of those years lived in good health, and the last 69 in wedded bliss to my father, who is alive and well. But I do not miss her one whit less because she was 89. Indeed, one might argue that having lived to age 61, I have had that much longer a period of time to get used to having — and very much enjoying — my mother in my life. My mind is deeply grateful; but it also knows that my mother is gone forever.
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From my late teens onward, the relationship between my mother and me improved steadily. As the years progressed, I enjoyed her more and, yes, loved her more. Unless either an adult child or a parent has serious psychological issues, I am convinced that what I experienced is quite common. There is an enormous amount of luck — good and bad — in life; and one of the greatest pieces of good luck for a parent (and child, for that matter) is for parents and children to have the time to work things out.
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Hands down, the best web site that I have ever found on the topic. If the inept hospice workers had given my sister and me this type of information I think we both would have actually been there when mom passed.
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Signs of Imminent Death
Eyes have glassy fixed stare with large pupils
Pasty grey, or blue greyish colour present especially on lips, hands and feet
Hands and feet can be cold
Jaw open, breathing through mouth very rapid or very slow (often with rattle) with pauses of 20-50 seconds between breaths
Unresponsive to voice or painIt is most important not to do or say anything that might disturb or anger the person, like speaking abruptly, arguing, crying, rough handling; maintain a peaceful atmosphere with people praying, meditating or chanting according to the dying person's wishes or as instructed by their spiritual guide/teacher. Any supporters can generate limitless universal or devotion in their hearts and the wish for the dying person to be released from suffering with this love or devotion/faith and become unified with love, with god or with their source of inspiration and virtue.
Update on HSLDA attorney Chris Klicka's condition. A lot of what he is going through sounds very familiar to what I read about when my mother was dying, although she didn't have as much agitation. I wonder if part of that is because she was older and female.
Mr. Pete spoke personally to Mr. Klicka a few years ago at a big homeschool convention about his multiple sclerosis. One of our sisters-in-law had just been diagnosed with MS and was failing fast. He suggested a diet that he was on that had improved his health greatly and he gave a copy to Mr. Pete. Both my brother and sister-in-law went on this diet and they too had good results with it. I will always be grateful to Mr. Klicka for that.
A very interesting post and conversation about the dearly departed sending us messages. If you read that mom - take the hint!!
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