Medullary Sponge Kidney
Chronic Pain in the Medullary Sponge Kidney (MSK) Patient
by Shelly Matthewson
Private Researcher
IC Support Group Leader
MSK Patient
Oct./2007
MSK is often stated as a benign disease. The overall population that has
problems is about 10% of MSK patients. Given this low amount number, the
problems encountered by the suffering minority are often left with little
help for living with this, at times, debilitating disease. According the
e-medicine article, Medullary Sponge Kidney, Oct.6, 2006, ( by Amit K. Gosh
MD, DM, FACP, FASN, Associate Professor, Department of Internal Medicine,
General Internal Medicine Research Fellowship, Mayo Clinic College Of
medicine), UTI’s are common in MSK. He later states in the article the
importance of treating all infections aggressively until the urine is clear.
Later in this article is a very important statement, "Some physicians may
encounter patients with MSK who claim severe, chronic renal pain without any
manifestation of infection, stones or obstruction. The source of this pain
is unclear."
It is this last statement, along with my own suffering from chronic
un-explainable kidney pain, that has led my doctor and me to spend a great
deal of time and energy researching our options. We noticed that my symptoms
greatly improved when left on long term antibiotics. In the end, after many
research projects, including experimentation with various culturing methods,
talking to many prominent biofilm researchers, and my physician’s own
experience, that has led us to a probable cause for at least a large part of
the constant pain issues. We believe that biofilm infection has actually set
up within the calcium in the kidney stones and nephrocalcinosis. My own case
is a little more dramatic, since a botched stone surgery at another
location, caused me to scoped with un-sterile instruments, and therefore
introducing some very resistant noscomial infectious agents into my body.
Many of these agents are known to be formers of biofilm infections. My
doctor has also seen a number of prostatitis
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